Almost every year, I diverge from my usual beekeeping nonsense on this blog and write a bit about our annual ALS fundraiser, Betty’s Run for ALS.
You probably know someone who had ALS, aka Lou Gehrig’s disease. Right now you are reading a blog written by someone with a non-typical form of the malady. (That’s me!) I was diagnosed 19 years ago, though for about five years before that, I realized that something wasn’t quite right with my balance and my muscle tone. Most people with ALS suffer a very quick and devastating progression. Mine has been about 20 times slower than normal. It’s non-typical and we’ve been calling it ‘motor neuron disease’. No one knows why mine isn’t following the usual path.
As a family, we have been active with the Alberta ALS Society for a long time. My wife worked directly with/for them for a few years and was on the executive fundraising committee for years. I’ve been the recipient of wheelchair ramps and other equipment when I’ve needed the help. Each year, we participate in the big annual fundraiser. This year, we were among over a thousand others who helped raise money to fight ALS. Pure Sweet Honey Farm, Inc., owned by two of my best friends, has contributed to our Calgary fundraiser for years. This year, they were our sweetest Gold Sponsors!
Whenever we have this ALS fundraising event, I invite people to sent a few dollars to our group, Betty’s Run for ALS. Betty’s Run is named for a Calgarian who passed away from ALS 22 years ago. This event has been held in her memory every year since. Donations are used to buy equipment (vans, power wheelchairs, special beds, and so on) and to support research in finding a cure. Great progress is being made, but the cure is still elusive. With everyone’s help, it will come.
Here are some pictures from yesterday’s Betty’s Run for ALS.